Missouri Cancer Registration Center

Research

Research studies which include Missouri residents can benefit from linkage with the Missouri Cancer Registry and Research Center (MCR-ARC) database, a population-based database of all reportable tumors diagnosed among Missouri residents. If you are a researcher interested in conducting an epidemiologic study using MCR-ARC data for the purpose of determining the incidence and etiology of malignant neoplasms and/or evaluating measures designed to eliminate, alleviate, or reduce the impact of cancer, please contact us for more information and prior to submitting an Institutional Review Board (IRB) request.

About MCR-ARC Data

Accessing MCR-ARC Data: There are three different levels of data that can be released for cancer surveillance and research purposes.

Level A: Aggregate data

Reports of aggregated data stratified by non-confidential data fields (i.e. case counts by race, sex, stage, age, county, etc.). Many statistics can be obtained quickly at the following websites:

MCR data
Sources that include MCR data in addition to other states' registries
Source with non-Missouri, but similar data:

If you can’t find what you need, please submit a request form for Level A: Aggregate data. Please be specific in your request.

Level B: Individual level data without patient contact

Step 1: Contact us first to discuss your study.
We will first review your protocol. Then, we will assist you with obtaining approval from the Missouri Department of Health and Senior Services' IRB, which you will need before (re-) identifiable registry data can be released.

Please plan ahead to allow adequate time for the approval process. There may be a charge for this service, please see the fee schedule below.

Level C: Individual level data with patient contact

Step 1:  Contact us first to discuss your study.  We will first review your protocol.  Then, we will assist you with the following approvals that you will need before the data are released:

  1. Approval from the Missouri Department of Health and Senior Services' Institutional Review Board (IRB)
  2. Approved Contract/Agreement with budget

First contact of the patient or family will be made by the Cancer Research Program. Please plan ahead to allow adequate time for the approval process.

Note: Since permission is required before identifying information about cancer patients can be released to outside researchers: data linkages will generally have to be conducted at MCR by MCR staff. If you have additional questions or would like more details, please contact us.

Our basic fee schedule for linkages is based on the number of records that you will be sending us:

Number of records to be linked against the registry database Base cost
Less than 10,000 records $3,000
10,000 - 49,999 records $4,500
50,000 - 99,999 records $6,000
100,000 - 249,999 records $7,000
250,000 - 499,999 records $8,500
500,000 - 999,999 records $10,500
More than 1,000,000 records $15,000

There is an additional fee for lower data quality (defined as more than 10% of the records containing incorrect or missing values in any of the main linkage variables: first name, last name, sex, date of birth, and Social Security number) since that results in a higher manual review effort; and there are some miscellaneous fees for any unusual aspects that would cause extra work, but these areexpected to usually not be relevant.

If you have additional questions or would like more details, please contact us.

Research Publications